May 2013
4 posts
Walk for lupus now! →
Lupus is NOT a death sentence. With earlier detection and medical improvements, the survival rate has increased dramatically in the last 50 years. However, many people do die either directly from lupus activity or from related complications. Madame Lulu moves like cat woman. She comes stealthily when you least expect it, and you only know she’s been there because something is missing. What is...
March 2013
1 post
When it rains...
…it pours…and my joints feel like addicts going through withdrawal!
January 2013
3 posts
“It’s so hard to forget pain, but it’s even harder to remember sweetness. We have...”
– Chuck Palahniuk (via artificialdnafromspace)
be who you are and will be: 100 Years: What Delta... →
for-each-of-you:
What of women who move mountains When the sun’s setting ends the day Where to retreat from hours toiling Where, at night, do they lay?
-My Sister's House Is Home To Me by Adaoha Hamilton
So it is hard to believe that anyone who reads this would not already know, but for the sake of propriety…
December 2012
1 post
November 2012
1 post
October 2012
1 post
September 2012
2 posts
June 2012
1 post
May 2012
12 posts
WatchWe’re graduating!!!!! Praise God!
April 2012
5 posts
Madame Lulu is slick
Someone you know could have lupus! No really, they can…and they may not even know it. One of the women in this video suffered without a diagnosis for 21 years.
http://www.youtube.com/user/LupusFoundation
You can help support research and education for early detection, treatment and hopefully a cure through donations to the Lupus Foundation of America. Walk for Madame Lulu now :-)
...
March 2012
2 posts
Ménage trois: Me, You and Madame Lulu
In honor of Valentine’s Day (Don’t judge me…I meant to post this earlier), this post discusses Madame Lulu’s role in my romantic relationships. An article in LUPUS now: sought to give women and men advice on loving with lupus. The hopeful article voices the potential difficulties of bringing lupus into relationships, and gives suggestions for bringing up one’s illness, including the appropriate...
February 2012
1 post
I accept
The Americans with Disabilities Act (ADA) defines an individual with a disability as a person who: (1) has a physical or mental impairment that substantially limits one or more major life activities; OR (2) has a record of such an impairment; OR (3) is regarded as having such an impairment. I defined disability as: (1) an admission of my inability to function as well as other people; (2)...
December 2011
5 posts
The reasons I kept Lipschitz for so long
Hello!
Thanks for tuning in! After my last post, you may or may not be wondering why in the world Lipschitz was still my doctor after he misdiagnosed me with rheumatoid arthritis (after two tests said I didn’t have it). He was not the greatest rheumatologist. Each time I walked into his office for an appointment, he said, “What do you have again?” I would politely roll my eyes...
In the beginning...*cue dramatic music*
In early 2006 I was a healthy, relatively happy (after I received my college acceptance letters) teenage girl. In May, I noticed my fingers and wrists were swelling, I was always tired, and my shoulders hurt like hell. The nurse at my high school thought I had carpal tunnel. Oh goodness she was so wrong. That summer my knees started to swell and my feet swelled so much that I could not wear shoes....
“Do it I say. Whatever you want to do, do it now. There are only so many...”
